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Shock and OW!

I know that I said previously that I wouldn’t be seeing the neurologist for my EMG until September, but that changed.

I had such a terrible weekend. Saturday I basically did nothing because I felt so weak and tired. We went to bed at our regular time that evening, but at 12:30am Sunday morning, Hub and I were awakened by SCREAMING smoke alarms. In our house, all our smoke alarms are interconnected, so if one of them detects something every single alarm goes off. Not only does it make that horrendous alarm noise, but it also yells “FIRE! FIRE! FIRE!” I literally sat straight up in bed and hit Hub in the chest to wake him, then I turned the overhead light on. The dogs were freaking out, I was trying to get dressed, and Hub was trying to unhook himself from his CPAP machine, all while the alarms are screaming and yelling, and the dogs are running around the bedroom (we keep them closed in with us at night). We finally are semi-dressed and have shoes on and we open the door to the hallway and the screaming gets louder because there are more alarms in the hallway and in each of the bedrooms. I tried to get the dogs downstairs to give them treats (they always get treats when there are loud noises) while Hub tried to silence the smoke alarms (the dogs are still freaking out and Butthead races into her crate and won’t come out even though there’s an alarm nearly over her head still screaming). We don’t see or smell fire anyway, but Hub goes to investigate the whole house while I retrieve Butthead and rush the dogs outside and away from the noise. When Hub comes outside he tells me he has ripped down several of the detectors and the noise has stopped. I’m not happy, I’m afraid that there’s a fire in the attic or in the walls or there’s CO2 somewhere and that’s why the alarms went off. So at about 12:45, I find and call the non-emergency number for the fire department, and I explain what is going on. They take my address and say they’ll be out to the house shortly…and while we’re waiting the alarms go off again, so Hub rips MORE detectors off the ceiling and when the silence reigns again he takes the dogs into the basement so they can’t get out of the house and I go outside to wait for the fire department. To try to shorten this story–which really has nothing to do with this post–the firefighters come out to the house in the middle of the night, and after inspecting the entire house, they figure out that ONE of the smoke detectors has malfunctioned. And because it was wired into the “system”, it sets off all the other detectors in the house. Bless them, the firefighters were pretty awesome, and by 1:30am, they were walking back down our driveway in the darkness to load back up onto the firetruck they had left in the street. We were awake, trying to re-settle the dogs and ourselves, until about 2am.

Okay, so Sunday night I pretty much had a bad breakdown. I was just sobbing over how bad I was feeling and how tired I was and how afraid I was. I felt like I was getting worse, that my weakness was worse, my fatigue was worse, my imbalance was worse, and that now I was having trouble with my hands/arms and not just my legs.

For only the second time in the four and a half years I’ve been seeing T, I actually contacted her to seek guidance and help after-hours (or out of a normal session). The only other time I’ve done that is when my mother died. I am so grateful and so lucky that she took the time to talk to me in email (which is how I contacted her). I can’t say anything got resolved or that I even felt “better” in that moment, but knowing someone was out there to reach for–and who would reach back–was enormously helpful. Yes, Hub was here and he was being supportive, but this time it took a more confident and experienced communication.

When I finally caught my breath, I was so exhausted from struggling during the day and crying for hours that I went to sleep at 9pm. When I woke up the next morning, I called to see if my primary doc could see me, even though I didn’t think it would be helpful. They were able to fit me in just before lunchtime, and Hub took time off of work to go with me. After that phone call, I called the neuro’s office to see if he had any cancellations where he could fit me in for my test. The receptionist said no right away, because she had just gotten off the phone with someone else asking the same thing. So I asked to leave a message for my doctor, and I told him I was feeling worse and that I was having trouble with my hand/arm. He called within thirty minutes and fit me in for the EMG for two days later (that’d be today).

I went to my primary, who said she didn’t know what else to do for me except to send me to see a sleep doctor to see if I was having some kind of sleep disorder, and also to an infectious disease doctor to talk about Chronic Fatigue Syndrome. We were sitting in her office and I was so damn tired and frustrated that I literally put my head down on the edge of her desk and tried not to cry. She asked me what was going on and I told her, I was exhausted, frustrated, and scared. She immediately asked me if I was depressed. I was both annoyed and frustrated with this, because ANYONE in my shoes, with this length of exhaustion and weakness, and not knowing what was wrong, would be afraid and sad and upset. I thanked her for the offer but said I wasn’t ready to do that right now. She told me to try to stop focusing on my symptoms because I would surely make them worse by doing so, and to continue with my neuro appointment.

After that, we ran off to get my blood work done for the neuro and then we went home. Fast forward (cuz this is soooooo long), I spent most of today trying not to think about the test and/or what it might or might not say. I semi-obsessively check my laptop to see if my blood work has come in while trying not to spend time searching Dr. Google. We finally head off to the neuro office and within about ten minutes we are back in the testing room. I had read a little about the test(s) and heard both that it was no big deal and that it hurt like a mo’fo. I think I ended up somewhere in the middle.

The neuro doctor is very quiet in general, so there was almost no talking. The room had to be like 85 degrees, which I assume was on purpose because some of the testing is on muscles and maybe the heat keeps them relaxed? The first part of the test was where they put some thingys on you and then send an electric shock through certain nerves. The second part they use needles, stuck into your muscle, to record some kind of feedback. I asked what the needles were like and was told they are thinner and shorter than acupuncture needles. When he started zapping me with electricity, I asked if the needles hurt more or less, and he said “there’s no electricity with the needles” and went back to his zapping. So after another few minutes of silence and him randomly saying “zap here”, I ask him if his patients say the electricity is worse or the needles, and he says “it goes both ways.” *sigh*

The zaps range from a slight sting to a full-on-stick-your-fingers-in-an-outlet zap to OH SHIT THAT HURT LIKE A MO’FO. Fortunately, they are pretty quick zaps–up and down both legs in multiple places and along one arm and hand–and within about forty minutes we are moving on to the needle part of the test. He actually started with my arm and it really wasn’t all that bad, as long as I didn’t look at what he was doing. When he moved to my first leg, it was fine until he went into the inside of my calf and then it HURT. Especially he had trouble finding the right spot to be in and he had to sort of shift it around and push harder and that was pretty bad. The same issue happened with the other leg, but then we were pretty much done. After I got dressed, I asked him if he saw anything and he only said, “nothing jumped out at me” and said he’d have to go through all the data that had been collected during the test in the computer. I asked if there was anything I should or shouldn’t be doing, and he only said to stay hydrated and to rest. He scheduled us to come back for a follow-up for next Wednesday, so I have a week to sit and wait…

Tomorrow morning I go in for my CT Scan for my cancer follow-up. My father is driving me because Hub has to be in the office and I feel so weak and off-balance that I am afraid to drive myself. Friday I have a massage therapy appointment, which I hope I can get to, and I might have to have my father drive me again. I had cancelled my PT appointment for this past Monday because I didn’t think I’d be able to do it. I hope I can return to it this coming Monday, because I need to continue to try to make progress on my shoulder.

For now, I have a headache and I think I need to go to sleep. I have to get up early to start drinking the crap for my CT Scan, so off I go.

 

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Two year cancer update

This past week I went to see my gyn oncologist for my annual cancer check-up. Oddly, the office was very quiet and they took me back on time. Normally the place is mobbed and we wait forty-five minutes to an hour to see the doctor. I’m not complaining, it was just so weird. As it was, my original appointment was at 2pm, but the Thursday before my appointment the office called to say the doctor was going to be out of the office at that time and could we move the appointment to an earlier time. We, of course, got there about twenty minutes early, and during that time we saw my doctor wandering around casually like he had nothing much going on. Normally he’s running from one exam room to another and never comes out to the front the entire hour or so we’re waiting.

I wasn’t sure if all this was a good omen or a bad one.

My blood pressure is always good in their office. This time, though, the wrist cuff they normally use wouldn’t stay velcro’d on, which was a bit upsetting because it made me feel like my wrist was too fat. I had to stop myself and change my inner monologue, because every other time we’ve been there the wrist pressure cuff has worked. I assume this particular one was losing it’s velcro power. So the nurse did an old-fashioned manual check and again my BP was pretty awesome. Normally I get white-coat syndrome and my BP is kind of high, but at the gyn/onc’s office it’s in the normal range…and I have no idea why.

Le Dottore came into the exam room wearing an awesome royal purple tie with white polka dots. Purple is mine and my mother’s favorite color, so I took that as a good sign. I even told him how much I loved his tie and he said purple was his favorite color. We did the exam–which took no time at all–and he pronounced everything “awesome.” I asked about my yearly CT Scan, because the original plan in 2015 had been yearly ct scans every July, and yearly paps every January. This last January he said paps every TWO years…and this week he said he saw no reason for a CT. I said I thought it was yearly CT’s and paps every 2 years. He said “no reason to do paps unless there are symptoms” and basically the same for the CT scan. He said my exams have been perfect and without symptoms, he didn’t see a reason to do the scan. I don’t know if their policies have changed due to new information or what, but it was kind of stressful to hear that they wouldn’t be following me as closely as I had been told. I said I was a little concerned about not doing a CT, but that I understood getting a CT subjected me to radiation (which can actually cause cancer), so the choice wasn’t cut and dry. He said it was my choice, we could do one now or talk again next year. He said recurrences happen most often in the first two years, but even that was a low number (he said 10% but I’d read 15%). But again, he was happy to give me a referral if I wanted the CT. I asked for the referral but said I’d think about my options.

I discussed this with Hub and with T, and in the end I think I’m going to get the CT scan. I’m too worried about all the bits inside that he can’t see or touch, where cancer could be growing without any symptoms or pain. (My mother had cancer recurrence and she had no physical symptoms that she spoke of.) If I didn’t do the CT when I could have and then something happened, I’d beat myself up something fierce. And since “ct scan radiation causes cancer” is actually NOT something they can prove scientifically–it’s a guessing game because they can’t subject people to CT’s to see if they get cancer–I’ll be taking what is an unknown risk versus the actual risk of missing something growing.

I’ll be waiting until after the wedding to do the scan so it doesn’t make me feel lousy or sick this week when I have so much to do. And I’ll have the relief of knowing there was nothing to be seen that could have been seen.

Two year cancer check achievement unlocked.

 
 

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On borrowed (big dog) time

Hub and I have an evening wedding to go to in a few weeks. It’s a formal occasion, which I talked about briefly before when I bitched about having to find a gown and shoes. Hub had to buy a new suit, too, because the pants on his old suit were messed up…even after taking them to the tailor for the last big event we had. Anyway, I digress (already, jeez, I’m only in the first paragraph), because this isn’t about the wedding.

It’s about the dogs.

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Who, me?

 

Technically, not so much Butthead, but more about Le Moo.

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You can’t see me hiding back here, can you?

 

We’re hiring someone to come dog-sit while we’re at the wedding, mostly because we’re over-protective and we have to be forty minutes away just before dinnertime and who is going to feed our pups? The wedding is a family affair, so anyone who might be able to feed the dogs are all going to be with us at the wedding. So we’re going to hire someone to come to the house, feed the dogs, and hang out for a while to let them out and stuff. This means finding someone to hire, which means telling people about our dogs.

In theory, this is no big deal because we talk about Le Moo and Butthead all the time. You think your friends with new babies are bad? Yeah, they’re amateurs. We love our dogs, we spoil our dogs, we talk about them all the time and will happily explain how cute, adorbs, and completely disobedient they are (which they really aren’t most of the time). So it should have been a cinch to fill out the online profiles for the dogs when searching for a dog-sitter. Until Hub had to fill out their ages. Then he had to try really hard not to cry.

Both our dogs are large. Butthead is a svelte 76lbs…I wish she’d gain weight but she just doesn’t seem to be able to keep it on. I think she’s on the thin side but our vet says she’s a perfect weight. So at least I know she’s not sickly, since he’s happy with her physicality. Le Moo, on the other hand, is always on the…um, chunky side. She vacillates between 84-95lbs. At her highest, it was 95, now on a moderately strict diet she’s probably around 85lbs. She’s a big girl, but her (suggested) breed does indicate a bit of rotundness, so we’re all good with her size (except the vet, of course).

If you know dogs, you know that big dogs don’t live very long, generally speaking. Le Moo supposedly is part Great Pyrenees, and in looking up their life span it says 10-12 years. Le Moo is going to be 10 this fall. Although she’s not really slowing down too much (any slower than her norm and she’d be asleep all the time), we do see a moderate change in her personality. When my Mom’s English Lab got to a certain age, she changed from being completely ball-obsessed and independent to clingy. Le Moo is getting more and more clingy with every passing week. For her, that means she’s seeking our attention much more than she used to, and I find that she’s seeking out Butthead’s companionship more. At night, Le Moo used to sleep far away from Butthead, usually the complete opposite end of the room and sometimes hiding in the closet. Now, she will actively go and sleep right next to Butthead. And when we wake up in the morning, there are more days when she’s still there, rather than on her own bed or in the closet…or somewhere else away from Butthead.

Hub was incredibly upset to realize Le Moo’s age. I guess I’m more obsessive about these things, so I know her age and it’s difficult for me to forget it. I often find myself hugging Le Moo and whispering in her ear that she better not ever leave me. But it’s going to come and I am going to be devastated. I cried for months after we adopted her because I wasn’t over Sweet Pea’s death less than two months prior. As much as I wanted to love Le Moo–I’d picked her out and I’d made the decision with Hub to adopt her–I resented her because she wasn’t Sweet Pea. And she didn’t seem to need or want me in her life. She was so aloof and so independent and I was accustomed to Sweet Pea who was clingy and shadowed me everywhere.

When I realized what was happening and I began working through my grief over Sweet Pea, I came to understand that Le Moo was a different dog. And that she was the dog I needed at that time…and I had to be the owner she needed. Obviously I’ve become incredibly attached to Le Moo, although it is in a different way than SP, and I am terrified of the day she leaves this earth.

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I’ll just sleep here so you can’t put the recliner foot rest up or even put your feet on the floor.

 

I watch her when she’s out in the yard, because despite her weight and size, she can move like nobody’s business. If there’s something to be chased, she’s fast and light on her feet. If there’s something REALLY good to chase and bark at, she’ll actually pogo up in the air like she’s on a pogo stick or a trampoline. It’s outstanding and amazing to watch! People who have met her and know her–she mostly acts like a lump–have actually stared in shock when they’ve seen her run or pogo out in the yard. No one understands how she can do it and most won’t believe it until they see it, but it’s true. And so far, she’s still chasing and pogo’ing, so I am happy about that.

I don’t know how she dares even consider leaving this earth, but inevitably it will happen. Hub and I will be devastated. Until then, we continue to love her (and tolerate Butthead) for every moment we have together. Borrowed time or not, she’s still my Ladybug, and I’m going to celebrate all that she is until and then some.

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Why yes, this is my ball full of Kix cereal, thanks!

 
6 Comments

Posted by on June 29, 2017 in anxiety, Butthead, dogs, fear, future, hub, Le Moo, loss, love, Sweet Pea

 

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Jet plane, day 1

We dropped Hub off this morning at 4:15am for his flight. After I got home and let the dogs out, I instant messaged with Hub until he boarded the plane at 5:45. By then I’d already fed the dogs and gotten back into bed. I dozed for a few hours, then got up and went about my day. For the most part I felt like Hub was at work and I allowed myself to just be that way. I’ve almost read two books and I pretty much had movies on the TV all day, although mostly they were movies I’d already seen. I had Mama Mia! on the TV maybe three times at random points through the movie, because I like singing those songs and they passed the time more easily. Hairspray was on at least once, too.

I’ve done okay for most of the day. Unfortunately, around 9:30pm tonight, Butthead freaked out and had her tail tucked under and was barking hysterically while backing her way into the bedroom where I was reading and watching TV. I went out into the hallway and checked all the rooms up here (she refused to follow me and instead ran down the stairs), but I have no idea what her major malfunction was. I took them out in the darkness, but luckily it was a little rainy, so both dogs ran out and peed and ran right back to the door to go in. So we kind of settled into the bedroom at that point and after some treats and wandering around, they both have settled in. I suspect they are also exhausted from starting their day at 3am.

I’ve talked to Hub twice on the phone and a few more times on instant messenger. He seems to be okay but the last we talked about an hour ago, he was sounding just exhausted. I hope he’s going to sack out soon, even though it’s pretty early in the evening out there. He said he kept moving his legs around on the plane, even though first class wasn’t as roomy as he’d hoped, and that he felt okay when he deboarded. Is that a word? Deboarded? What else do they call it? Anyway, he says he felt okay and when I talked to him later he said he was feeling okay just tired from the long day.

I was happy to hear from my SIL by phone (I couldn’t figure out the damn facetime thing through FB’s messenger) after she opened my gift to her for her wedding. I crocheted her a blanket that turned out to be about queen size (the pic below is spread out on a king size guest bed) in these amazing colors that made me think of her. Hub’s father said she has walls in her house painted in yellow and orange, so I found this awesome yarn and went to town. Took me several months (and a lot of pain) to get the blanket done, but apparently she loved it a lot. Made me feel like the work was worth it.

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I saw my father earlier when I took the dogs out this afternoon and he reminded me that I could stay at his house overnight or whatever. I said I was going to try to stay home, but if I had any issue I would just hike over there with the dogs and stay there. Around 8:30pm tonight he called to see how I was doing and how my day had gone. Then he reminded me that if I had any trouble I should just let myself into his house no matter what time it was. Then he gave me his late-night schedule so I would know how late he would be awake, but then he told me again to just come over whenever I need to.

I’m not sure if I’ll be able to sleep tonight or not. I still have some reading left in my second book of the day and a youtube video to watch for a channel I subscribe to. I dunno…I’m locked in the bedroom with the dogs and I’m sure I’m safe (even though I’m kind of worried that I locked the bedroom door and if someone needs to get in here to rescue me for some reason the locked door will be an issue), but it’s still weird. I kind of hope I’ll be tired enough to fall asleep at some point.

I had my regular soup for lunch and leftover takeout for dinner, so eating wasn’t a major issue today. I have more takeout again for tomorrow night’s dinner if I want it, and I (pressure) cooked up a fresh pot of my lunch-soup this morning so I have enough for the rest of the week. It’s boring, but I eat soup most days of the week for lunch because it means I don’t have to think about it. I dump it in a bowl, add some sauteed mushrooms, and nuke it…easy-peasy no thinking. Also, the soup is bean soup, so it’s pretty healthy…protein and fiber and veggies and carbs, all-in-one.

That’s pretty much it for today. One down, three more to go.

Next installment…

 
8 Comments

Posted by on May 28, 2017 in anxiety, Butthead, control, dad, dogs, fear, food, hub, love, sleep, stress, time, tired

 

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He’s leaving on a jet plane

Fortunately, I know when he’ll be back again.

But right now, that doesn’t really help. Tomorrow morning we’ll be driving Hub to the airport at 4am so he can catch a 6am flight to California for his sister’s wedding. And then I’ll come home and it’ll be me here with the dogs.

I had my appointment with T today and we talked all about this. I’ve got my plans made for the four days and four nights he’ll be gone, which include A LOT OF BOOKS from the library and a massage scheduled for Tuesday. Plus, I figure I’ll be renting lots of movies either from amazon prime or our on-demand cable television. And if things get bad enough, I’ll go spend time at my father’s house with the dogs. Not sure I want to sleep there because taking the dogs and all their paraphernalia will be a pain in the ass. Additionally, T reminded me to text her if I need to talk to her. I suspect I’ll be reading a lot of books to waste the time, both day and night, and napping on and off during all hours. Mostly I’ll be scheduling myself around dogs’ schedules for food and trips outside…and then trying to nap when they are sleeping.

Also, to prepare, we bought a security camera floodlight thing, that alerts me if there’s movement outside the door…and I can open the app and see live video of what’s going on (and it records the video if I miss the alert). It also turns on the floodlights with movement at night, along with low-light live (and recorded) video. So, at least I have that extra bit of security for myself.

Part of what I talked to T about is the fact that I don’t really know how to be without Hub anymore. I know how to be alone when he’s here (or at work), but I don’t know how to be alone when he’s not HERE. I’ve known him for longer than I’ve NOT known him. It’s been years since we’ve had any major separation (4 since his parents’ accident where he was gone for 3 days unexpectedly, but closer to 8 years for anything longer than those couple of days), and at that point I had my parents helping me while I stayed at their house…and we had Sweet Pea, who was easy as pie to take care of. Now I have this big house and I have Butthead, who requires a lot of energy and close watch. And I don’t have my mom nearby to hang out with when I get lonely, sad, or scared.

Another part of my concern is that Hub has health issues. He has diabetes (with minor leg and feet circulation problems), high blood pressures, and has a history of supra-ventricular tachycardia. I mostly am worried about him getting a blood clot in his leg from the traveling in the airplane…and even worse I’m worried that he won’t realize there’s something wrong. Or he’ll think whatever it is that is wrong isn’t a big deal and he’ll ignore it and not get to a doctor. Or that he’ll ignore it and get on the plane to come home and make it worse. The possible thought of losing him–especially considering how hard it’s been to lose my mother–is really overwhelming. I’ve been trying really hard NOT to impose my fears on him. The only thing I suggested is that he try to keep moving his feet and legs around on the plane just because of his circulation issues…and that’s all I said.

The probability of him having any kind of major problem is pretty low. The probability of me having any kind of major problem is pretty low. I have to just keep reminding myself that we’ll get through this. A week from now it will be over and we’ll be back to normal programming.

Until then, I am trying not to judge how I am handling things. I’m going to do my best to do my best, and then whatever happens happens.

(day one post)

 

 

 

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What am I going to do

I’m still feeling lousy. There are days when I barely have the energy to do anything, including feed myself. I force myself to get up, do things, take care of the dogs and myself. In between, I rest. I get outside with the dogs for a 10-20 minute stroll every day around the yard as the weather allows so I am at least moving somewhat. I’ve read a couple of books and I’m trying to do some crocheting in small doses.

But I feel lousy. My imbalance, the nausea, heartburn, fatigue, pain…it’s all still here. Sleeplessness, heat intolerance…I’m hot and cold all the time. Sometimes I feel sweaty when there’s no sweat. Sometimes my hands and feet are sweaty and clammy. Today I have tingling in my fingers and face. And always the pain in various parts of my body. Both shoulders are bad, and for one of them I can’t lift my arm up above shoulder height. I’m eating small amounts of food and feeling full, then feeling hungry again later. Rinse and repeat when I eat again…small amounts of food and feeling full, then hungry again.

Our health insurance doesn’t kick in again until May 1st. Even so, the last time(s) I saw my doctor, she found nothing troubling. It could still be grief. I’m sad a lot, but I’m also exhausted a lot. Sometimes I’m not sure if I’m sad or tired. This stuff has all been going on since the beginning of February. It doesn’t seem as if it’s going away…it’s coming up on three months. I can’t imagine it’s just going to disappear anytime soon.

As if I didn’t have enough to think about, the biggest issue looming is that Hub is flying to California soon for his sister’s wedding. He’s going to be gone for five days. And I’m going to be alone, having to take care of myself and the dogs 24/7 for those days. I’m going to be in this big stupid house all by myself, day and night, for five days. I’m going to have to be up early to feed the dogs, and then I’m going to have to be up and alert late to make sure they get out at night before bed. And then I’m going to be alone overnight in the darkness. I haven’t been alone like this since before I first got sick over 17 years ago. The last time Hub traveled–maybe eight years ago–I stayed with my parents with the dog we had at that time so they could help me.

But it’s different now. My mother is gone, and she’s the one who kept everything in line in their house. My heat intolerance is bad and Dad still keeps their house too hot for me, so I’ll feel horrible all day and not sleep at night. Butthead is difficult to keep track of, and I can’t trust my father or my brother to make sure she’s not eating things in the yard late at night or early in the morning.  The friends I have who are local have their own lives, work, families, pets, I can’t ask them to come help me. I considered hiring someone, but having a stranger in the house while I’m here alone is frightening to me. I’ve considered staying up all night and sleeping all day, but the dogs go out multiple times during the day so I’d have to be awake and dressed to do that repeatedly during daylight hours. That means no sleep at night and basically no sleep during the day. I could try to sleep at night but being alone in the house overnight is scary for me and I’m not sure I’ll sleep. Not sleeping will, of course, make everything worse.

This all makes me feel like an invalid. But I’m honestly afraid to be alone 24/7 for five days. I don’t know how I’ll deal with pain and anxiety and exhaustion without any support or reprieve from taking care of the dogs and myself. There are moments when I think I will be able to handle it, and then there are moments when I am positive I won’t be able to handle it. The truth will probably live somewhere in between, in the end. I have avoided thinking about this since February, when Hub bought his tickets, but it’s coming too soon for me to keep pushing it aside.

 

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No Joy Whatsoever

So Saturday the 4th in the evening, I got hit with a wave of exhaustion and wooziness and then weakness that left me feeling like I wasn’t able to stand long enough to even shower. Sunday morning I thought I was okay, but by 2ish, I was feeling the same again. This was more than just feeling tired, it was long past tired. It was close to how I felt the day after my surgery. Exhaustion, severe and overwhelming. Weakness like I had no muscles left after a 100 mile walk in one day. It was beyond beyond.

Monday morning I called my doctor’s office but no joy for an appointment, so Hub and I went off to a local walk-in/urgent care clinic not far from our local hospital. After 2 1/2 hours of waiting, ekg, bloodwork and pee, the doctor (who was wearing a face mask and coughing phlegmy) told me she found nothing in my tests but couldn’t rule out a stroke so I needed to go to the ER.

At 2pm, we checked into the ER and spent the next 5 1/2 hours being pushed from triage, Ekg (again), bloodwork (again), pee (again), the “main” waiting area, then to a small, isolated, windowless room with several other couples and individuals (some of which were contagious based on the fact that two of them were wearing masks–both of which then took off their masks while they were in there with us). This cramped little space is where we sat for another 90 minutes while they gave me IV fluids, while the others around us also sat getting IV treatments…along with two older people slouched over in wheelchairs (where there was no space for them) and another person slept on a chair. They finally found us a room in the ER, where the PA who saw us did a neurology physical test, said probably no stroke and they don’t want to do a CT without a real reason. So she did thyroid test (again) on the bloodwork which came back normal…as did all my blood work from both walk-in clinic and the ER lab. So she sent us home saying I should see a neurologist as a follow-up.

My doctor’s office called the next day and said, “come in so we can talk about what’s going on”, so I did on Thursday. Part way through the appointment (at 3pm), the doctor said “you’re having shortness of breath and leg pain, you need a lung ct and leg ultrasound to rule out DVT and lung blood clot”. Luckily for us, the nurse was able to hustle us an appointment at a local radiology office instead of sending us back to the ER again. Unfortunately, the nurse at my doctor’s office made an appointment for us at the location that was forty minutes away in the “city” versus the one that was ten minutes away and the same distance from our house. And she actually only made the CT appointment, not the leg ultrasound appointment. We were lucky that the person managing the location we went to fit us in for both tests within an hour…and the techs were both very nice about the situation.

The radiology place won’t tell us anything, they just fit us in for both test and sent us home at 4:30. I called my doctor at her office, who said she would call from home and get test results (bcuz her office closes at 5pm) and call me once she has them. She called at about 5:50 to say both tests were normal, for me to pick up in the inhaler she prescribed because my chest had sounded “tight” and she was thinking I might have asthma…and then I should rest, hydrate, and get back in touch if I get worse.

I’m at home, still feeling crappy and tired and weak. I’ve been eating normally, trying to drink as normal as possible, and trying to rest. Because of how badly I was feeling, I had a shitty panic attack Sunday afternoon (before the walk-in/ER visit) that I kept trying to get out of but it just kept recycling when I thought it was over.

Ten days after my appointment with my primary, I went back for a follow-up because I wasn’t feeling much better and the inhaler was giving me leg cramps. The doctor listened to my lungs and pronounced them clear, said I could stop the inhaler, and that I should go home and hydrate and rest some more. She said there’s a virus going around and that it wasn’t unusual for the main complaint to be exhaustion. And in fact, she was leaving shortly after my appointment because she was having the same symptoms I was (although she was also getting a little cough).

So I’m still home, still hydrating, still trying to eat normally, and I’m resting so much I’m tired of resting. Sadly, I’m still feeling really overtired and I have no energy for anything. It’s been a struggle for me to keep up with taking the dogs out repeatedly during the day (and I can’t leave Butthead outside alone because she eats stuff in the grass and then gets sick), and I’ve hardly been able to do more than one or two loads of laundry in a day. Going to the grocery store or to my therapy appointments leave me exhausted. Tomorrow I go for massage  therapy and I have no idea how I’m going to feel afterwards.

And through all of February, my pain has been ramped up. I can’t seem to get around it. My muscles all hurt. My stomach hurts. I’m having lots of trouble sleeping. I haven’t crocheted since January. I haven’t done much of anything since this all started…

Tonight…well, tonight Hub goes for his sleep study to see if he has sleep apnea. That means I get to go out into the dark and the cold tonight to let the dogs out before bedtime. It also means I will be sleeping alone tonight. Not a happy me!

Did I mention that Hub’s job is transitioning now that a bigger corporation bought his smaller employer? Did I also mention (can’t remember if I have) that they’re screwing around and even though we technically have health insurance with the new company we won’t actually have cards until some unknown time in mid-to-late-to-end-of March? So if we get sick or need the ER or to see a doctor or to GET OUR MAMMOGRAM we can’t. Or we pay on our own and maybe the insurance company might reimburse us later for some small portion of the amounts we paid? (*sob*) Talk about anxiety…

 

 

 

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