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Bad bactrim bust

So here’s the history on my sinus infection and the antibiotics I was prescribed.

I’ve taken 8 days of bactrim, 2 pills a day. After the 2nd full day, I have been able to take the pills without having Hub sit with me for an hour. Today I took it after he left for work so I was home alone! I have four little shitty pills left in the container. In addition to all the stuff I’ve previously talked about–including HORRENDOUS heartburn/reflux–I’m now getting itchy. Mild but diffuse. My head, my arms, my back, my legs, my face, my hands, my ears…all little creepy crawly itchy spots. No rash, thank goodness, but itchy.

The heartburn has given me pain in my stomach in addition to chest-heartburn pain, throat burning, inflamed throat-feeling, and it has given me the GERD cough.

I called the doctor’s office twice, and both times I pushed the button to “speak to a staff member” and both times I literally let the phone ring for 3-4 minutes before hanging up. I left a message for my doctor in my online portal, but sometimes they don’t respond to that for a day or two. I ended up calling back and pressing the button for scheduling. The woman who answered said they are really busy (great excuse) but she took the message for me and forwarded it to my doctor’s office. She said either the doctor would call me back or her nurse would.

I do not want to take another pill. I’m concerned this is the beginning of an allergic reaction with hives and the whole schmear. As it is, it’s going to take 3-4 days for the medication to get out of my system…I could possibly still get hives or more itching during that time. The problem is, I don’t want to  have to start over with another antibiotic. Bleh. I’m crossing my fingers that the doctor says 8 days is enough for now and to see how I feel in a week or two.

The smell SEEMS to be abating somewhat, but it’s not GONE. I hope it gets gone because it’s still really irritating. I’m half concerned that I’m getting used to the smell and won’t be able to tell if it’s really gone or not.

SO the doctor’s nurse just called me back. She asked if I had a rash or hives with the itching and I said NO. She said that itching is a side effect of bactrim, and as long as there’s no hives or rash, I can try to finish the last four pills. She said that an actual allergic reaction would include hives or a rash, versus just itching. She recommended benedryl to help with the itching. I don’t take benedryl–or anything if I can help it–so I haven’t decided what to do yet. I haven’t had itching overnight, so I might try to take another AB dose tonight and see how it goes. I mean, I only have FOUR PILLS (two days) left, I don’t want to start all over with a new course of antibiotics if I don’t have to.

But maybe I’m going to ask them to put bactrim on my no-no list from here forward.

 

 

 

 

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Bactrim blues

So I’ve taken six pills so far for what my doctor diagnosed as a sinus infection.  I wanted to make note of what has been happening with the bactrim, at least for my future reference. Here’s what my historical experience prepared me for:

Upon getting my ABs, I come home and go look up my blog post from when I had to take these particular ABs, and I apparently have nausea, bad taste in my mouth, and dry mouth (editing to add, and dry/itchy eyes near to the end of the course of ABs) to look forward to for ten days at least. Two pills a day over ten days.

I’m definitely getting a lot of heartburn/acid reflux. My appetite is nil and the nausea is there for sure. My stomach hurts almost all the time, but that could also be from the acid reflux/heartburn. What is also a bit distressing is that last night before dinner (after the 4th pill at 9:30am that morning), I had a really bad hot flush on my face and ear, and I had anxiety. I’m not sure if the anxiety came from the hot flush or from the ABs. So I took another pill this morning at about the same time as yesterday…and tonight the hot flush started again before dinner. I didn’t even wait this time, I just got a cold pack and put it on my face until I was pretty well frozen. I didn’t get the anxiety, but I also stopped the hot flush early on, so maybe I stopped the anxiety before it started.

There’s no discernible change in the smell issue, yet. I’ve been trying to use different essential oils to distract myself from the smell (I just realized I had some good oils downstairs I could use…brown sugar and vanilla!), but it doesn’t last long.

Last night we invited my father over for dinner since my brother (the one that lives with him) is out of town for several days. Then tonight we went out for burgers with him and my other brother. Tomorrow Dad’s going to the grocery store with us in the morning, basically because he’s tired of being stuck in the house alone. He and I talked about how hard it is to be alone in the house all the time (while his house-mate is out of town), and I told him how concerned I am about being alone when Hub goes away. I told him I might end up sleeping there at night and he said if I did then they would be able to help me with the dogs in the early morning hours. I said I’d let him know. I’ve been going out for walks every day and when I get to his house, I call him to tell him to send his dog into the yard with us…sometimes he comes out to chat at that point. It’s hard because I used to do this to go hang out with Mom…and it’s not as easy to find things to talk about with Dad all the time. But I’m trying t keep up with the walking outside, so if he wants to chat with me he’ll have the opportunity.

I’m really tired of feeling so crappy. I want to regain my energy. I want to move forward.

 

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Probably TMI for most

Well, I won’t go into all kinds of details, but still, you’re forewarned.

I was talking about some anxiety in my last post. Here’s what is going on. I’ve been doing hypnotherapy during a few of my regular therapy sessions with T in order to work on my cardiophobia. We’ve actually been working both with CBT and hypnotherapy for my fear of exercise. Part of my fear is because of my heart, but part of my fear is also putting myself in more pain than my daily dose…on purpose. I’m in pain pretty much most days, but exercising means I’ll be suffering more pain because of strained muscles and such.

So part of my therapy is to exercise. Shocking, I know. We have both a treadmill and a recumbent bike in our house (the treadmill is like…oh, 15 years old, but it still works!), so I have options on what I can do for exercise with machines. The bike is newer than the treadmill and it has those little dohickies on the handles that measure heart rate, which is a no-no for me. Just watching the heart rate go up is an anxiety trigger. So many people say exercise helps their anxiety, but it’s actually a major trigger for me. I started riding the bike (I figured it was lower impact on my arthritic knees than the treadmill) every night, with the intention that I was riding it to work on my fears, not on my weight loss. It gave me permission to see the exercise as something different…not to be perfect at it, not to think that if I only ride it a few minutes every night that it was a failure because a few minutes is a waste in the weight loss world. No, it’s part of my therapy, part of my recovery, and even sitting on the damn machine is an accomplishment.

I started slow with the bike, literally and figuratively. And I met my first goal of riding the bike three days in a week…and then I just kept going. I’ve been able to increase by one minute since I started. I’ve learned not to put my hands on the heart rate dohickies…and if it is too tempting, I’m going to put socks over the handles to make them not work. I listen to a little music, I play a game or two on the iPad if I have it. I go in, I get on, I ride, I leave, I recognize the accomplishment of what I’ve done. I went ten days. Some of the days I could have talked myself out of it (the a/c upstairs died again…my knee hurt, I had another owie which I’ll explain shortly) but I didn’t talk myself out of it. My mental recovery seems to be so much easier for me to work on than my physical. I haven’t really ruminated on that very much, but I suspect that is coming in therapy soon.

Monday night I went to shower and I realize there is a redness under my right boob. I’m endowed and…droopy. I’ve been that way all of my adult life, I’ve never gotten a heat rash or sweat rash under my boobs before (I am wondering if this is because of the surgical menopause and hormone issues). I don’t sweat like normal people. My first thought was oh shit it’s breast cancer because it was only under one boob and I know that there are some breast cancers that present that way. I managed to convince myself it wasn’t cancer even before the redness showed up under my other boob. At that point I was pretty well sure it was a heat rash (or sweat rash) from riding on the bike. So now I’ve got knee pain, foot pain (stupid plantar faciitis) and underboobs rashes. *sigh* I go buy these things that go under the boobies that is supposed to help wick away sweat. The are uncomfortable and weird and they move around. Joy. I also buy some tea tree oil and a powder for rashes and fungus, in case it’s a yeast fungus under there. The under-boobie wicky thing seems to help but not make it go away altogether yet.

Wednesday night I’m on the bike again (I’ve even been able to ride when I’m home alone, which is a big deal for me because if I have a heart attack on the bike…and I’m alone… shudder) and I’m like what is that pain? It’s in the crease of my left leg where it meets my groin. And I’m thinking it’s another damn heat rash. Great. I put some gauze in the crease and try to deal with it for overnight. Next day, I put another clean bit of gauze there to keep the area from rubbing and getting worse and I go about my day. I get on the bike again last night and I’m like … unh, that hurts. I finish my predetermined ride and go shower and suddenly I’m realizing it’s not the heat rash in the crease of my leg that was hurting. I have a cyst…my guess is an infected cyst (I get sebaceous cysts under my arms sometimes, but not for a while) or it could be an ingrown hair. It’s, uh, down there. Ya’ll ladies know what I mean. It’s in an unfortunate place, making sitting, standing, walking, lying down all very very uncomfortable. Dammit.

I tell Hub about the issue (he looks somewhat horrified), I go to sleep and wake up this morning first thing to call my doctor’s office. I don’t want to mess around with this area, so I beg them to fit me in today. They do and I go see one of the other doctor’s in the practice. She says “abscess” but won’t otherwise identify if it’s from a cyst or an ingrown hair. She doesn’t want to do anything with it but suggests I see my gyno to see if they want to drain it or what. I tell her my gyno is an hour away and not likely to be able to fit me in today, so she suggests I see the gyno in their extended practice and she goes to make an appointment for me. When she comes back, she tells me I’ll be seeing the nurse practitioner that afternoon, and oh by the way here is a prescription for bactrum (antibiotics). Oh how I love pills. And ABs are my favorite.

I go back later to see the NP, who tells me she can’t drain cysts and all the doctors are booked. But she graciously offers to do a lookie loo to see if the cyst actually needs to be drained. She measures it and says it doesn’t look too big, but writes down the info for future reference in case I come back with an issue next week. “Good news!” she chirps. “I wouldn’t drain this. It’ll drain on its own. Take your ABs and use warm compresses and a sitz bath as often as you can manage.” We talk about timing for when the pain will abate and what to expect from the “draining” and I go home.

The first time I saw the cyst last night, it was white. By the time I got home and everyone was done poking at it, it was a purple-red. Yay. (I told you, TMI.) Upon getting my ABs, I come home and go look up my blog post from when I had to take these particular ABs, and I apparently have nausea, bad taste in my mouth, and dry mouth (editing to add, and dry/itchy eyes near to the end of the course of ABs) to look forward to for ten days at least. Two pills a day over ten days. The NP told me to be happy, the other option is something like 4 pills a day over 20 days or something ridiculous. But at least I have experience with this AB, so maybe I’ll be okay with taking it more easily. (Prolly not, but one can hope.)

This is what I get for exercising? One time I went to vacuum my bedroom…I plugged in the vacuum and 10 seconds later the circuit blew. I reset it, plugged the vacuum into a different outlet across the large room and 10 seconds later another circuit blew. I reset it, used a plug in the upstairs hallway and THAT one blew. I decided at that moment that G-d did not want me to vacuum. I wrapped up the cord and put the vacuum away. So, is this what I’m getting about exercising? Multiple messages saying “don’t do it!” Well, another conversation for therapy, I guess.

Also, ow ow ow ow. 😦

 

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I haven’t posted

mostly because I wasn’t sure I was ready to really share. Sometimes I need time to process before I know what to say. Often when I’m in session with T, she’ll say things and I’ll just sit there for a minute before I say, “Oh-kay” even. And then I’ll need to take home what she’s said and really process it.

I’ve been processing the hell out of some stuff.

We went to see my mother’s new radiation oncologist, who was not upbeat about the situation. He, in fact, was very gloom and doom about my mother’s prognosis. She hadn’t had her PET scan yet, but he seemed to indicate that they weren’t likely to be able to “cure” my mother. We spoke with him for about 45 minutes, maybe an hour, and he tried to explain what was going on. The phrase that still eats at me is, “Chance of cure is not high.” It took me a while to think on the fact that just because she can’t be “cured” doesn’t mean she can’t live WITH the cancer. But at that point, we still had no results of the PET scan, so we had no decisions to make. She has since had her PET scan, but the radiation oncologist did not call her to talk to her about his suggested path as he was supposed to. She ended up calling his office three days after the test, talked to the receptionist and left a message (the receptionist said, “oh, it’s always good that the patient calls to remind the doctor he was supposed to call” and she was SERIOUS not snarky!) but didn’t get a call back. So she called her chemo oncologist and left a voice mail and HE called back right away. He said he was going to call the other doctor first thing this morning to talk to him. Then he sent her the written report. But reading those damn things is…hard. So we still have no set path, and at this point Mom has decided she wants a second opinion, no matter what.

The appointment was hard. The doctor put his hand on my shoulder as we were walking out of his office and said, “I’m sorry to give you such bad news.” It made my heart skip a beat. It’s like you aren’t sure what is exactly being said, but when a doctor says that to you point blank, you really get it. On the way home in the car, we were only mildly discussing the appointment, but also trying to talk about other things. I knew my mother was upset–this whole episode has been much worse than the original diagnosis, the hysterectomy, the chemo–so I was trying to do something to help her. I finally wrote on my notepad (I always take notes for her during appointments), “Today you are okay.” I ripped the page off and handed it to her, and I told her to just keep it in her pocket. Every time I see her she shows me that she has it with her. The truth is, today she IS okay. The recurring spots are small and localized (at least from the CAT scan that found them), and she’s not having symptoms. (The unfortunate part is that they are concerned it has made its way into her lymph system…and also that it recurred so quickly after chemo ended.) So my brother and my uncles (her brothers) are all researching and inundating her with information, but I’ve been staying out of it. I’ve been doing what I can do, which is talking about other things with her. Doing other things. Planning other things. When she brings something up about the cancer or the research, I talk with her. But otherwise, I don’t bring it up. She has enough of that from everyone else.

The same day my mom was getting her PET scan, I was in with the gyno CRNP talking about MY fantastic upcoming procedure. Apparently the next step for me is something called a hysteroscopy. Where they put you in stirrups and shove a camera and a tube past your cervix into your uterus–which they fill up like a water balloon with some liquid–and poke around. They also take “material” for biopsy to see what’s going on. This is done in their women’s procedure center, attached to their office, which fortunately is attached to a hospital. So I get to be awake, but I’ll be having all kinds of medication. Now I’ve had a biopsy before, but no camera. This is supposed to take a little longer and likely be more uncomfortable than just a biopsy because the camera is larger and there’s more that needs to be done. In preparation for this fantastic voyage, I get to start my week by taking 800mg ibuprofen today, 2x a day, for two days. That’s today, by the way, and I’m home alone. So I have no Hub to be my safety person as I take my pills. I know it sounds weird because we’re talking about ibuprofen, but I haven’t taken ibuprofen in 15 years. I take nothing, other than the occasional antibiotics and only recently that stupid progesterone. I don’t even take tylenol or aspirin. So I get to take that ibuprofen with lunch, then again with dinner. Then 2x tomorrow, as well. AND I get to take something weird tomorrow night to “soften” my cervix in preparation for the camera. And then morning of the procedure, I get more ibuprofen AND a beta-blocker (which the doctor says is FINE with my PVCs) in preparation for counter-acting the epinephrine I’ll be getting directly into my cervix during the procedure (which causes people to be “jittery” and anxious!). I’m so unhappy about all these medications, I can’t even explain. I’ve been blocking this whole thing out until this morning so I wouldn’t have to think about it. I asked if they were going to be monitoring me, and the CNRP said they’d do my blood pressure ahead of the procedure, but during they basically just visually monitor me…and depend on ME to tell them if something is wrong. I wanted to laugh and cry, because those of you who are anxiety sufferers KNOW that we don’t interpret things–like pain, breathing, heart rate–properly when we’re anxious. Now the doctor DID prescribe me a couple of ativan pills in case I needed (or wanted) to take it the night before or morning of the procedure. I’ve had ativan ONCE in the hospital ER when they were putting me into the MRI. I don’t remember much about it, but I’m worried if I take the ativan (0.5mg) the morning of, I won’t be alert enough to tell them if something is wrong. I’m open to opinions on that from those of you who have experience with ativan.

I’m also concerned about being in that kind of horrible position for an extended period of time, due to my muscle issues. The CRNP keeps telling me that recovery shouldn’t be bad–lots of women go back to work the next day, some even go “shopping” the same day she told me–but I have muscle pain after going to an annual exam because of having to keep my legs open without any kind of support. So the CRNP offered me “candy cane” stirrups, which I found out later will sort of hang my feet in the air rather than me putting them into stirrups and having to keep them balanced. No idea if the candy cane stirrups will be better.

On top of all of that, I am trying to ignore the potential result of the biopsies they might get. This part has been really really hard, because it scares me the most.

I’m feeling overwhelmed between what’s happening with me and what’s happening with my mom. The potential scheduling of my procedure caused me so much stress because I KNOW it’s going to take me a couple of days to recover, and I was worried that my mother was going to have an appointment during the time I was unable to get around to go with her. I tried to work things out, but we had no idea what timing was going to be with her scan and her results and etc. As it turns out, because she’s considering a second opinion, I should be okay by then to go with her. And if not, my uncle (her brother) has really stepped in to attend appointments…he has some medical background, so he understands things differently than we do.

So just the length alone of this post should indicate my mental state, eh? If you’ve read all of it, thank you. If not, no worries. I just needed to be able to vent AND put this all done for posterity.

(and for record’s sake, my PVCs have been milder and less often in the past two or three days. I have no idea why.)

 

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Pill expedition update

I have been SO tired that mustering the energy to post about how tired I am was nigh on impossible. Obviously, since I haven’t blogged about it for a couple of days. Along with the no energy portion of the game, I’ve been dealing with an overwhelming feeling of….blah.

I had my session with T today, and of the 60 minute session, I suspect I spent about 15-20 minutes of it sighing and saying how BLAH and tired I felt, often rubbing my eyes like a two-year-old who missed her nap. T offered to end the session early, but I didn’t want to waste my WHOLE session with her. I only see her every other week, and I felt like I had things I wanted to talk about. Partway through two different conversations–that I started–I stared at her and admitted I had completely lost my train of thought. She reminded me this had a direct cause–the progesterone–and that it had a time limit. I told her I was having flashbacks to my prilosec fever, and again she reiterated that this had a clear and distinct cause, and that I could finish the two days I still had. That I needed to just wait it out.

I’ve had thoughts flitting through my head a lot these days. You know, like they tell you not to let things take hold and push you into anxiety? Don’t ruminate on things, don’t obsess, don’t chew on stuff. I said it was getting really weird for me because stuff will pop into my head and I’ll shoo it away like a gnat. So I feel like stuff is whizzing in and out of my head at top speed. So–after telling me that having all those gnats flying around all the time must drive me crazy–she asked me to NOT shoo them away and instead take one and deal with it using all the tools in my box. On my belt? Whichever phrase you’d prefer to use I guess. To take the thought and bring it to its full conclusion…which we did together. But my point for blogging about this? First they tell you to NOT concentrate on the thoughts, then they tell you to concentrate on the thoughts. WTF. No wonder we’re all a little crazy, right? LOL

That’s all I have for today, I guess. I’m still hanging on to those cramps and the headache. The dry eyes are better but not completely resolved. The exhaustion is clearly still on me. Two more pills. Then whatever comes next.

(Oh, on a completely different note, I had a nightmare last night about being bitten in the face by a vampire bat. WTF?? I woke myself up with muffled screaming. Yay.)

 

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Today’s pill update

Well, good news. The cramps are only at a dull hum today. I slept horribly last night (again), but today I got to keep the heating pad on my back to quell that achy feeling…which later turned into some minor spasms. Fun!

The headache remains with me, though, as do the dry eyes. I have been avoiding wearing my glasses because I thought I would rest my eyes because of the headache, but I kind of suspicion that I was squinting which actually contributed to the headache. Damned if you do, damned if you don’t.

My PVCs have been buggin’ me again these last few days. Not that they went away, but they seem to be bloopier. I tried to explain to the doctor that they felt like that bubbling up you hear/see in a fishtank? Blooooo-op! So yeah, they’ve been bloopier. And more frequent, more on top of each other. More frustrating, more annoying, more anxiety-inducing.

On top of all that is this fatigue. The weakness and fatigue are really pressing on me. It feels like how I felt back when I was on the prilosec and in the “fever” of it. At that time I was under-nourished and under-hydrated. I’m paying very close attention to my water intake and making sure I eat a normal amount. I’m even watching to make sure I eat enough protein. But still, I feel exhausted by 2pm, and end up doing much of nothing all afternoon. Dinner is a struggle, and then I come up to bed until it’s time to sleep. Or at least attempt to sleep.

I swallow another pill shortly. I wonder how long after the pills end until I start feeling more normal energy-wise.

 

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Hey, good news

Apparently crying is almost as helpful to dry eyes as BLINK tears are. Woo.

I’m still dealing with the stupid cramps and fatigue–which the CRNP has confirmed are both side effects of the progesterone–but yesterday came on a new side effect. DRY EYES. Dry eyes that are also feeling bruised. WTF. So I emailed the CRNP this morning to see if this is a regular side effect and she said NO. I don’t believe her, but whatev. Just because it ain’t listed on the paperwork doesn’t mean it doesn’t happen to lots of people. The problem is, so far, the BLINK tears in a bottle I have aren’t really doing much long-term. So after hearing from the CRNP this morning about it “not being a side effect”, I cried because I’m tired and frustrated and in pain. I feel weak and fatigued and angry…and crampy goddamit! and now this? Really?

The CRNP suggested I take up to 800mg of Ibuprofin to help with the cramps. No go for me because Ibuprofin screws with my stomach. I take NO otc products because of stomach issues and medication sensitivities. So I’m living with the heating pad (wish I had two, one of the front and one for the back…my back is so achy and tired) and trying to remember my yoga-for-pms poses. Also, heating pad means I’m getting warm all the time, and my ability to self-regulate my temperature sucks. So it’s 32 degrees out and I have the ceiling fan going with the heating pad on me. *sigh* Did I mention the headache, too?

I’ve had PMS before. I’ve had really shitty episodes and some not-so-bad episodes. But I don’t remember them going on consistently every hour of every day for this many days and nights (so far).

I feel so whiny and pathetic. But truthfully, I feel whiny and pathetic.

So let me go back to my heating pad and count again the number of pills left in that damn bottle.

 

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