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Bad bactrim bust

So here’s the history on my sinus infection and the antibiotics I was prescribed.

I’ve taken 8 days of bactrim, 2 pills a day. After the 2nd full day, I have been able to take the pills without having Hub sit with me for an hour. Today I took it after he left for work so I was home alone! I have four little shitty pills left in the container. In addition to all the stuff I’ve previously talked about–including HORRENDOUS heartburn/reflux–I’m now getting itchy. Mild but diffuse. My head, my arms, my back, my legs, my face, my hands, my ears…all little creepy crawly itchy spots. No rash, thank goodness, but itchy.

The heartburn has given me pain in my stomach in addition to chest-heartburn pain, throat burning, inflamed throat-feeling, and it has given me the GERD cough.

I called the doctor’s office twice, and both times I pushed the button to “speak to a staff member” and both times I literally let the phone ring for 3-4 minutes before hanging up. I left a message for my doctor in my online portal, but sometimes they don’t respond to that for a day or two. I ended up calling back and pressing the button for scheduling. The woman who answered said they are really busy (great excuse) but she took the message for me and forwarded it to my doctor’s office. She said either the doctor would call me back or her nurse would.

I do not want to take another pill. I’m concerned this is the beginning of an allergic reaction with hives and the whole schmear. As it is, it’s going to take 3-4 days for the medication to get out of my system…I could possibly still get hives or more itching during that time. The problem is, I don’t want to  have to start over with another antibiotic. Bleh. I’m crossing my fingers that the doctor says 8 days is enough for now and to see how I feel in a week or two.

The smell SEEMS to be abating somewhat, but it’s not GONE. I hope it gets gone because it’s still really irritating. I’m half concerned that I’m getting used to the smell and won’t be able to tell if it’s really gone or not.

SO the doctor’s nurse just called me back. She asked if I had a rash or hives with the itching and I said NO. She said that itching is a side effect of bactrim, and as long as there’s no hives or rash, I can try to finish the last four pills. She said that an actual allergic reaction would include hives or a rash, versus just itching. She recommended benedryl to help with the itching. I don’t take benedryl–or anything if I can help it–so I haven’t decided what to do yet. I haven’t had itching overnight, so I might try to take another AB dose tonight and see how it goes. I mean, I only have FOUR PILLS (two days) left, I don’t want to start all over with a new course of antibiotics if I don’t have to.

But maybe I’m going to ask them to put bactrim on my no-no list from here forward.

 

 

 

 

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Bactrim blues

So I’ve taken six pills so far for what my doctor diagnosed as a sinus infection.  I wanted to make note of what has been happening with the bactrim, at least for my future reference. Here’s what my historical experience prepared me for:

Upon getting my ABs, I come home and go look up my blog post from when I had to take these particular ABs, and I apparently have nausea, bad taste in my mouth, and dry mouth (editing to add, and dry/itchy eyes near to the end of the course of ABs) to look forward to for ten days at least. Two pills a day over ten days.

I’m definitely getting a lot of heartburn/acid reflux. My appetite is nil and the nausea is there for sure. My stomach hurts almost all the time, but that could also be from the acid reflux/heartburn. What is also a bit distressing is that last night before dinner (after the 4th pill at 9:30am that morning), I had a really bad hot flush on my face and ear, and I had anxiety. I’m not sure if the anxiety came from the hot flush or from the ABs. So I took another pill this morning at about the same time as yesterday…and tonight the hot flush started again before dinner. I didn’t even wait this time, I just got a cold pack and put it on my face until I was pretty well frozen. I didn’t get the anxiety, but I also stopped the hot flush early on, so maybe I stopped the anxiety before it started.

There’s no discernible change in the smell issue, yet. I’ve been trying to use different essential oils to distract myself from the smell (I just realized I had some good oils downstairs I could use…brown sugar and vanilla!), but it doesn’t last long.

Last night we invited my father over for dinner since my brother (the one that lives with him) is out of town for several days. Then tonight we went out for burgers with him and my other brother. Tomorrow Dad’s going to the grocery store with us in the morning, basically because he’s tired of being stuck in the house alone. He and I talked about how hard it is to be alone in the house all the time (while his house-mate is out of town), and I told him how concerned I am about being alone when Hub goes away. I told him I might end up sleeping there at night and he said if I did then they would be able to help me with the dogs in the early morning hours. I said I’d let him know. I’ve been going out for walks every day and when I get to his house, I call him to tell him to send his dog into the yard with us…sometimes he comes out to chat at that point. It’s hard because I used to do this to go hang out with Mom…and it’s not as easy to find things to talk about with Dad all the time. But I’m trying t keep up with the walking outside, so if he wants to chat with me he’ll have the opportunity.

I’m really tired of feeling so crappy. I want to regain my energy. I want to move forward.

 

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Weighted blanket – link

I have no investment and no connection to this kickstarter. I just happened upon it in my Twitter feed and was very interested. I’m considering buying one, and then decided it might be of interest to others here.

https://www.kickstarter.com/projects/1620645203/gravity-the-weighted-blanket-for-sleep-stress-and?ref=thanks_share

 
3 Comments

Posted by on May 6, 2017 in anxiety, link

 

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What is that…smell?!

So I think it was Friday when I first noticed the smell. It might have been Saturday, it might have been Thursday. Initially, it was like, WTF smells funny? And I was walking around sniffing. Smelling my clothes, smelling my hair, smelling the blanket on the couch. Then I started thinking it was one of the dogs that smelled bad…because of course they do, they’re dogs. But no, this smell was not the dogs. And it wasn’t the Hub. I thought it might be an old bottle of shampoo I’d been using because honestly, I was smelling it everywhere I went.

I have a very sensitive nose. I think I’ve mentioned that before, either here or in comments elsewhere. I smell every-damn-thing. And there are some smells that just drive me crazy. This was one of those smells. I’ve spent hours trying to define it…it’s like smelling some hot, stale air that is being blown on you constantly. I briefly thought it was the fans on my laptop, but then I realized I was smelling it away from the laptop and even away from the house.

I changed my shampoo, I changed my clothes, I cleaned my hairbrush, I stopped taking the b12 pills that I’d started a few weeks ago…but I just kept smelling it. Sometimes it would go away, then it would randomly come back again. Then I realized that I had a weird taste in my mouth, too. When I wasn’t so intent on the smell, then the taste would bother me. So, like I should never do, I went to Google. I had trouble figuring out what to type in, but I tried a couple of different things and ended up with stuff like: medication side effects, tonsil stones (WTF), tonsillitis, sinusitis. I was fairly convinced that this was tonsil stones, mostly because I had no symptoms of tonsillitis and almost none for sinusitis. I’ve never had tonsil stones before and I couldn’t see any evidence of them, but seeing inside my own mouth is kind of difficult for me. So in effect, no matter what the diagnosis is, the SMELL was coming from me. BLECH. Hub swears he doesn’t smell anything (which the doctor later confirmed on her own behalf), but I SMELL IT.

As I’d mentioned, Hub’s insurance didn’t kick in until May 1st, so Monday morning I asked Hub to contact his HR department to get membership information so I could call my doctor’s office for an appointment. Unfortunately, she didn’t get back to us until late Monday night…and then I had a massage therapy appointment Tuesday morning that started before my doctor’s office opens (Tuesdays are late days for the dr’s office). After my massage therapy, I called the doctor’s office and got an appointment for the following day, which is today.

The doctor pronounced this as a sinus infection. She said my tonsils look like a sinus infection and the “smell” and “taste” symptoms are also signs of sinus infection. I have no pressure or pain, no green gooey or globby snot, just constant post-nasal drip (which I have from allergies) and the smell and taste issue. I’m walking around with this horrible smell in my nose and this yucky taste in my mouth…and now I get anti-biotics.

I HATE PILLS.

Ten days of 2 pills a day–one in a.m. and one in p.m.–which means I get to have pill anxiety twice a day for ten days. Yay. The doctor prescribed bactrim, which I took last year after my cyst issue, and apparently once before that I think for my post-surgery infection. I found this from last year’s cyst blog post:

Upon getting my ABs, I come home and go look up my blog post from when I had to take these particular ABs, and I apparently have nausea, bad taste in my mouth, and dry mouth (editing to add, and dry/itchy eyes near to the end of the course of ABs) to look forward to for ten days at least. Two pills a day over ten days.

I took my first pill about 90 minutes ago. About twenty minutes in, I had an anxiety “flash”…which kind of means I had that ripple of anxiety wash over me and I felt like something wasn’t right. But Hub was with me, and I told him, and I went on trying to distract myself for the hour post-pill-taking. My mouth still feels weird, but I suspect that’s the yucky taste in my mouth bothering me. I’m feeling pretty relieved because Hub says he’ll be working from home both tomorrow and Friday, and then he’s home for the weekend as well, so I won’t have to take any of the pills on my own for a few days. Hopefully at that point I’ll be okay to take them on my own.

And hopefully this smell will go away FAST. It’s really been driving me pretty cray-cray.

 

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What am I going to do

I’m still feeling lousy. There are days when I barely have the energy to do anything, including feed myself. I force myself to get up, do things, take care of the dogs and myself. In between, I rest. I get outside with the dogs for a 10-20 minute stroll every day around the yard as the weather allows so I am at least moving somewhat. I’ve read a couple of books and I’m trying to do some crocheting in small doses.

But I feel lousy. My imbalance, the nausea, heartburn, fatigue, pain…it’s all still here. Sleeplessness, heat intolerance…I’m hot and cold all the time. Sometimes I feel sweaty when there’s no sweat. Sometimes my hands and feet are sweaty and clammy. Today I have tingling in my fingers and face. And always the pain in various parts of my body. Both shoulders are bad, and for one of them I can’t lift my arm up above shoulder height. I’m eating small amounts of food and feeling full, then feeling hungry again later. Rinse and repeat when I eat again…small amounts of food and feeling full, then hungry again.

Our health insurance doesn’t kick in again until May 1st. Even so, the last time(s) I saw my doctor, she found nothing troubling. It could still be grief. I’m sad a lot, but I’m also exhausted a lot. Sometimes I’m not sure if I’m sad or tired. This stuff has all been going on since the beginning of February. It doesn’t seem as if it’s going away…it’s coming up on three months. I can’t imagine it’s just going to disappear anytime soon.

As if I didn’t have enough to think about, the biggest issue looming is that Hub is flying to California soon for his sister’s wedding. He’s going to be gone for five days. And I’m going to be alone, having to take care of myself and the dogs 24/7 for those days. I’m going to be in this big stupid house all by myself, day and night, for five days. I’m going to have to be up early to feed the dogs, and then I’m going to have to be up and alert late to make sure they get out at night before bed. And then I’m going to be alone overnight in the darkness. I haven’t been alone like this since before I first got sick over 17 years ago. The last time Hub traveled–maybe eight years ago–I stayed with my parents with the dog we had at that time so they could help me.

But it’s different now. My mother is gone, and she’s the one who kept everything in line in their house. My heat intolerance is bad and Dad still keeps their house too hot for me, so I’ll feel horrible all day and not sleep at night. Butthead is difficult to keep track of, and I can’t trust my father or my brother to make sure she’s not eating things in the yard late at night or early in the morning.  The friends I have who are local have their own lives, work, families, pets, I can’t ask them to come help me. I considered hiring someone, but having a stranger in the house while I’m here alone is frightening to me. I’ve considered staying up all night and sleeping all day, but the dogs go out multiple times during the day so I’d have to be awake and dressed to do that repeatedly during daylight hours. That means no sleep at night and basically no sleep during the day. I could try to sleep at night but being alone in the house overnight is scary for me and I’m not sure I’ll sleep. Not sleeping will, of course, make everything worse.

This all makes me feel like an invalid. But I’m honestly afraid to be alone 24/7 for five days. I don’t know how I’ll deal with pain and anxiety and exhaustion without any support or reprieve from taking care of the dogs and myself. There are moments when I think I will be able to handle it, and then there are moments when I am positive I won’t be able to handle it. The truth will probably live somewhere in between, in the end. I have avoided thinking about this since February, when Hub bought his tickets, but it’s coming too soon for me to keep pushing it aside.

 

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Paying homage and giving back

I know I’ve talked about these bears and dolls before…

I’ve been making them for almost a year–maybe closer to 10 months–so that I could donate them to our local police department for children in trauma situations. I had stopped making them for a few months because of my pain and health issues, but last month I finished up a few more bears so that I had an even number of dolls-to-bears ratio to donate. I then returned extra yarn I had to force myself to stop waiting on doing the donation by trying to convince myself that I just need to finish up those couple of skeins (I literally had enough yarn to probably make another 10 or 15 bears).

So last week, Hub and I put all 30 stuffed toys into the mini-van and set out for our local police station. When we finally found it (who hides a police station? Yeesh…we had to ask a random sheriff we spotted near the court house for directions), we gathered the three big bags and went into the station.

I’ve never been in a police station before, so I wasn’t sure what to expect. As it turns out, the station is actually on the newer side and seemed modern but dark. There were two women behind a huge, thick glass window and I went up to talk through the little speaker. The woman I was talking to seem surprised at my explanation, then rushed to say she didn’t have any tax deductible donation slips. Once she was convinced that this wasn’t about that, she made her way through a series of doors to join us in the lobby to take the bags. She seemed really pleased and said that most people try to bring in used toys or toys without tags (so they wouldn’t be sure if they were new) and that was a health risk, so they can’t take those. But since these were hand-made and obviously new, she gathered up the bags from us and told us how nice this was of us, and that she was going to take them straight to the administration offices.

We thanked her for her time, asked her to pass along how appreciative we are of the officers who take care of our community, then we left. She never asked for my name or anything else. I wanted to make this donation in honor of my mother, so that part made me happy. But I was sad to bring closure to that project. I’m not sure if I’d do it again with those particular patterns, as they are more tedious than I can handle these days.

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Hub took me for ice cream at a local shop in our downtown historic area, then we went home. The next day was the anniversary of the day my mother died. In honor of her on that day, I ate cheetos and chocolate marshmallow ice cream I’d made for her that she didn’t get to finish. Those were two things she ate a lot of in the last couple of years of her life. (I didn’t eat them together, of course!)

I’m glad to have done a little something to give back to my community. It’ll be odd if I happen across a child holding one of the toys, but no matter what I hope it helps someone somewhere.

 

 
 

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His new job update

So Hub went to his orientation today for his new job. And those…the new employer doesn’t allow you to start on their health insurance until the first of the month following your start date. For Hub that means we won’t be covered on their insurance until May 1st. What the hell is that? I’ve never heard that kind of thing before. So now we have to pay through the nose for Cobra from his old job for a month to make sure we are insured for the month.

Also, their information on their mental health coverage is written up weird, so I have no idea whether or not my therapist is going to be covered. Or if I have to have pre-authorization for my mental health coverage, which I’ve NEVER had to do before. Are they going to put a cap on how often they’ll pay for me to see T? I hate this shit, I really do. I just don’t have the energy or patience to deal with this stuff right now. Really, I don’t.

And post-orientation, Hub has no idea what he’s supposed to be doing tomorrow or who he’s reporting to. What kind of orientation is that?

Ugh. FRUSTRATED.

 

 
2 Comments

Posted by on April 3, 2017 in angry, anxiety, hub, insurance

 

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