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Category Archives: obsession

Shock and OW!

I know that I said previously that I wouldn’t be seeing the neurologist for my EMG until September, but that changed.

I had such a terrible weekend. Saturday I basically did nothing because I felt so weak and tired. We went to bed at our regular time that evening, but at 12:30am Sunday morning, Hub and I were awakened by SCREAMING smoke alarms. In our house, all our smoke alarms are interconnected, so if one of them detects something every single alarm goes off. Not only does it make that horrendous alarm noise, but it also yells “FIRE! FIRE! FIRE!” I literally sat straight up in bed and hit Hub in the chest to wake him, then I turned the overhead light on. The dogs were freaking out, I was trying to get dressed, and Hub was trying to unhook himself from his CPAP machine, all while the alarms are screaming and yelling, and the dogs are running around the bedroom (we keep them closed in with us at night). We finally are semi-dressed and have shoes on and we open the door to the hallway and the screaming gets louder because there are more alarms in the hallway and in each of the bedrooms. I tried to get the dogs downstairs to give them treats (they always get treats when there are loud noises) while Hub tried to silence the smoke alarms (the dogs are still freaking out and Butthead races into her crate and won’t come out even though there’s an alarm nearly over her head still screaming). We don’t see or smell fire anyway, but Hub goes to investigate the whole house while I retrieve Butthead and rush the dogs outside and away from the noise. When Hub comes outside he tells me he has ripped down several of the detectors and the noise has stopped. I’m not happy, I’m afraid that there’s a fire in the attic or in the walls or there’s CO2 somewhere and that’s why the alarms went off. So at about 12:45, I find and call the non-emergency number for the fire department, and I explain what is going on. They take my address and say they’ll be out to the house shortly…and while we’re waiting the alarms go off again, so Hub rips MORE detectors off the ceiling and when the silence reigns again he takes the dogs into the basement so they can’t get out of the house and I go outside to wait for the fire department. To try to shorten this story–which really has nothing to do with this post–the firefighters come out to the house in the middle of the night, and after inspecting the entire house, they figure out that ONE of the smoke detectors has malfunctioned. And because it was wired into the “system”, it sets off all the other detectors in the house. Bless them, the firefighters were pretty awesome, and by 1:30am, they were walking back down our driveway in the darkness to load back up onto the firetruck they had left in the street. We were awake, trying to re-settle the dogs and ourselves, until about 2am.

Okay, so Sunday night I pretty much had a bad breakdown. I was just sobbing over how bad I was feeling and how tired I was and how afraid I was. I felt like I was getting worse, that my weakness was worse, my fatigue was worse, my imbalance was worse, and that now I was having trouble with my hands/arms and not just my legs.

For only the second time in the four and a half years I’ve been seeing T, I actually contacted her to seek guidance and help after-hours (or out of a normal session). The only other time I’ve done that is when my mother died. I am so grateful and so lucky that she took the time to talk to me in email (which is how I contacted her). I can’t say anything got resolved or that I even felt “better” in that moment, but knowing someone was out there to reach for–and who would reach back–was enormously helpful. Yes, Hub was here and he was being supportive, but this time it took a more confident and experienced communication.

When I finally caught my breath, I was so exhausted from struggling during the day and crying for hours that I went to sleep at 9pm. When I woke up the next morning, I called to see if my primary doc could see me, even though I didn’t think it would be helpful. They were able to fit me in just before lunchtime, and Hub took time off of work to go with me. After that phone call, I called the neuro’s office to see if he had any cancellations where he could fit me in for my test. The receptionist said no right away, because she had just gotten off the phone with someone else asking the same thing. So I asked to leave a message for my doctor, and I told him I was feeling worse and that I was having trouble with my hand/arm. He called within thirty minutes and fit me in for the EMG for two days later (that’d be today).

I went to my primary, who said she didn’t know what else to do for me except to send me to see a sleep doctor to see if I was having some kind of sleep disorder, and also to an infectious disease doctor to talk about Chronic Fatigue Syndrome. We were sitting in her office and I was so damn tired and frustrated that I literally put my head down on the edge of her desk and tried not to cry. She asked me what was going on and I told her, I was exhausted, frustrated, and scared. She immediately asked me if I was depressed. I was both annoyed and frustrated with this, because ANYONE in my shoes, with this length of exhaustion and weakness, and not knowing what was wrong, would be afraid and sad and upset. I thanked her for the offer but said I wasn’t ready to do that right now. She told me to try to stop focusing on my symptoms because I would surely make them worse by doing so, and to continue with my neuro appointment.

After that, we ran off to get my blood work done for the neuro and then we went home. Fast forward (cuz this is soooooo long), I spent most of today trying not to think about the test and/or what it might or might not say. I semi-obsessively check my laptop to see if my blood work has come in while trying not to spend time searching Dr. Google. We finally head off to the neuro office and within about ten minutes we are back in the testing room. I had read a little about the test(s) and heard both that it was no big deal and that it hurt like a mo’fo. I think I ended up somewhere in the middle.

The neuro doctor is very quiet in general, so there was almost no talking. The room had to be like 85 degrees, which I assume was on purpose because some of the testing is on muscles and maybe the heat keeps them relaxed? The first part of the test was where they put some thingys on you and then send an electric shock through certain nerves. The second part they use needles, stuck into your muscle, to record some kind of feedback. I asked what the needles were like and was told they are thinner and shorter than acupuncture needles. When he started zapping me with electricity, I asked if the needles hurt more or less, and he said “there’s no electricity with the needles” and went back to his zapping. So after another few minutes of silence and him randomly saying “zap here”, I ask him if his patients say the electricity is worse or the needles, and he says “it goes both ways.” *sigh*

The zaps range from a slight sting to a full-on-stick-your-fingers-in-an-outlet zap to OH SHIT THAT HURT LIKE A MO’FO. Fortunately, they are pretty quick zaps–up and down both legs in multiple places and along one arm and hand–and within about forty minutes we are moving on to the needle part of the test. He actually started with my arm and it really wasn’t all that bad, as long as I didn’t look at what he was doing. When he moved to my first leg, it was fine until he went into the inside of my calf and then it HURT. Especially he had trouble finding the right spot to be in and he had to sort of shift it around and push harder and that was pretty bad. The same issue happened with the other leg, but then we were pretty much done. After I got dressed, I asked him if he saw anything and he only said, “nothing jumped out at me” and said he’d have to go through all the data that had been collected during the test in the computer. I asked if there was anything I should or shouldn’t be doing, and he only said to stay hydrated and to rest. He scheduled us to come back for a follow-up for next Wednesday, so I have a week to sit and wait…

Tomorrow morning I go in for my CT Scan for my cancer follow-up. My father is driving me because Hub has to be in the office and I feel so weak and off-balance that I am afraid to drive myself. Friday I have a massage therapy appointment, which I hope I can get to, and I might have to have my father drive me again. I had cancelled my PT appointment for this past Monday because I didn’t think I’d be able to do it. I hope I can return to it this coming Monday, because I need to continue to try to make progress on my shoulder.

For now, I have a headache and I think I need to go to sleep. I have to get up early to start drinking the crap for my CT Scan, so off I go.

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Hairy tale (updated)

The saga.

As I noted in my comments on the previous post, I contacted Ulta Corporate about the whole incident. I got an email in return the next day saying my complaint had been forwarded to the local salon. Another day and I get a call from the local Ulta Salon’s manager, asking me for pictures of my hair. I told corporate and her that I’d spent more than $100 on getting my hair colored in advance, and that the stylist at Ulta had ruined my hair.

So I sent the salon manager the inspiration picture and my hair when completed (previous post), and told her where I thought the burnt section was. She said she’d get back to me after she got the pictures (and after I explained that no I didn’t go somewhere else to get my hair fixed after the incident, that I’d spent money PRIOR to going to Ulta–that they ruined) and let me know what they could do. She said corporate had told her that I went and got my hair fixed AFTER the Ulta fiasco, but I forwarded her the communication from Ulta showing what I’d said. WTF.

The salon manager calls me back and says they’ll refund me the money for my updo, but that’s it (I had given the stylist a cash tip, so that was GONE because I had no proof of that). I said fine, go ahead and refund my credit card.

NO, I had to go into Ulta so she could print something out from the salon that I would then take to the front to have refunded. She told me to come in the following day (this was yesterday) at 3pm, when she would be on duty. And she said I had to go back to the salon area to meet her, I couldn’t just go up front to the registers.

WTF.

So I go to the store today at 3pm, and I look back toward the salon and guess who’s working? Yeah, the guy who ruined my hair. Why would the manager ask me to come in when she knew he’d be working? When she knew it would be uncomfortable for her customer? Because she doesn’t give a shit about her customers. Just like the stylist on Sunday, this was never about customer service or the customer’s good experience, it was about them and their issues. I steel myself and walk back to the salon area and as I’m approaching a woman comes forward. I ask for the manager by name and she says it’s her. I give her my name and she tells me to sit and wait…despite the fact that she’d been doing NOTHING when I arrived. She stood around and asked about someone working on the floor, then came back and told me to follow her to a private office in the back of the store. I have no clue why…but I figured maybe she’s going to apologize? To say SOMETHING customer service related?

Nope.

She tells me to sit in the other chair in the room, then says, “I want to see your burnt hair.”

She’s already said she’s going to give me my money back, so WHAT-THE-EVER-LOVING-FUCK?! My hair was up in a clip, so I pull it down and tell her it’s the under-layer as far as I can tell. She looks through my hair, rolls her chair back and tells the woman who just appeared, “You can take her up front and use her receipt to give her a refund.” Then she says to me, “YOU DID BRING YOUR RECEIPT, DIDN’T YOU?”

Despite her not having told me to bring a receipt prior, I did in fact bring my receipt. I whip out the receipt and she argues over the fact that the receipt says $38.25 (we had a coupon) and I had said $40. In fact, I had said $50 because I had included the tip, but like I said the tip was loooooong gone because it was cash. But she’s arguing over the fact that I said $40 when it was in fact $38.25…WHO IS THIS PERSON?!

I’m dismissed with the staffer, who takes me back past the stupid stylist again, and we go up front. She takes me right to a register, asks me if I have my credit card, then realizes the system will just credit the card automatically. *sigh* Then she asks me to sign and then says, “I’m sorry for the issue you had.”

I said thanks and left the store.

Who are these people? I mean, what kind of customer service is this? Hub told me not to bother to get my  money back, but they need to be held accountable. It’s not right that they should get away with things like this. People trust them, they should pay attention to their customers. And if no one calls them on their shit…

I need a nap. And a cold pack.

 
4 Comments

Posted by on August 3, 2017 in angry, anxiety, hair color, obsession, stress, tired

 

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Hairy tale (follow-up)

Because I need validation. I NEED VALIDATION.
(origin story post)

Inspiration photo:

 

The pic that Hub took of my hair:

20170730_222341

VALIDATE ME!

Makes me so mad that I paid for the above mess ($50 with tip). And see how in the above picture the side is sort of softly swooped away from the face in sections? I got none of that. He just pulled my hair back in a flat comb-back (don’t have a good picture of that part). And I got no soft curls, no romantic fall of hair…I got a bird’s nest. I wanted it up off my back because my dress had a kind of low back and I wanted it to show, but I didn’t get that either. And for the record, I told him all of this…and showed him the damn picture.

I know, I should have said something, but I couldn’t see ANY of my hair until we were done (he had me facing away from the mirror)…and by then we were already running so late that when we got home, I had thirty minutes to dress and do my make-up. I couldn’t stop to have him re-do, and I honestly was so freaking exhausted at that point that I didn’t care. But the more I think about it the angrier I get. I spent my time and energy not only finding someplace to go with my SIL and nephew’s girlfriend, but then I spent my waning energy by going there and having my hair done.

We had appointments for two of us at 1pm and the third person at 2pm. When they called to confirm on Saturday, they only had the first two appointments, and my appointment at 2pm was suspiciously canceled (they couldn’t figure out why or how it got canceled). The person on the phone re-added me, said they had plenty of time for me in the schedule, and that all was well. When we arrived at Ulta at 12:45, they had two stylists on duty and one of them was knee-deep in a wedding updo and makeup job. So they started with the SIL (who had to leave earlier than we did), and when the other stylist freed up (over an hour late), he started on my hair. He saw my inspiration picture, asked to see it again after a few minutes, then seemed to just go and do whatever he wanted. I suspect he has ONE style, that he then either puts UP or leaves half down, because I watched him do basically the same thing he did to me to the other person in my party, but he put her hair up instead of “curly”. HER hair looked pretty good, my SIL’s hair (done by the first stylist) was nice enough. I got a mess of a blobbly, sloppy pony tail with my hair wrapped around the base of it. WTF.

I kind of just want to go somewhere else with the pretty inspiration picture and ask them to do my damn hair so I can enjoy it. Boo.

I guess on the positive side, I had a lot of people compliment my dress and how I looked. I don’t handle compliments very well, so I felt awkward every time someone said something, but oh well. Amusingly enough, my SIL said she had picked out the same exact dress for her daughter’s wedding several years ago, but ended up wearing one of the other options she’d bought.

I’m in a bad mood. I shouldn’t post this blog but I’m gonna anyway. I wrote a review about the Ulta salon on Yelp, because I feel like the stylist just didn’t give a shit about what I wanted and people should know that.

I had a whole list of things I needed to do today, but other than PT this morning and packing up some purses to go back to Amazon (I ordered a “sampling” to go with my dress and kept one), I did none of it. Bleh.

Bleh bleh bleh.

Oh lordie I think he burnt my hair. I thought it was the smell of the product he used in my hair, but I have just washed and conditioned my hair and it STILL smells bad/burnt. OMG what the hell did he do??

 

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CT Scan follow-up

I had my CT Scan for my one year post-cancer follow up about two weeks ago. I had my appointment with my gyn onc a week ago. It feels like longer.

I had a chest, abdomen and pelvis scan, adding in the chest because of a cough I’ve had. I assume(d) the cough is from my allergies, but I figured as long as I was going in I might as well just be sure. I was also supposed to get checked for kidney issues–as per my urologist–but it didn’t quite work out the way I expected.

I went in with my forms and told them I was getting checked for kidney stones in addition to my cancer check. This was post-barium-drinking. The woman at the front desk frowned at me and said that the barium screws up their ability to see kidney stones most of the time, so she shoved the prescription back at me. I asked her to go ahead and send the films to the urologist anyway. Why didn’t anyone tell me about this issue? But the urologist knew my gyn onc wanted with and without contrast, so she had to know it wouldn’t be the best view. Besides which, I think she knew I didn’t have stones, but this was a CYA kind of thing. Btw, I never heard back from her after the scan. Joy.

If you saw my ct scan post (linked above), you may have seen my comments on the post. I survived the scan (obviously) with residual pain and feelings of BLECH. I actually got my written report the day after the scan, but without commentary from my doctor. Just the report showed up. It was not remarkable, with the exception of some finding of soft tissue in the center of my chest area, which was declared as possibly “thymic rebound”. WTF is that? I did a NO-NO and looked it up, which actually resulted in very little information. So I messaged my gyn onc, who basically told me to take it up with my primary, as it was outside his expertise. He otherwise called my CT Scan as NED. I am a bit distressed that this scan didn’t mention views of my lymph nodes like the first one did after diagnosis, but I’m hoping that means they were not remarkable (and not that they didn’t bother looking…)

I contacted my primary doctor’s office and she’s out of the country until the end of July. That’s more than 3 weeks away, so I asked for someone else to review the report (because I don’t think they actually get to see the images). The interim doctor said it didn’t look like anything concerning, but I should see my primary upon her return. WTF.

So while I was sitting around waiting for THAT to happen, a relative suggested I get a second opinion on my ct scan images. I didn’t even realize that was possible, but back to Google I went. Turns out there are places online that will allow you to send them your images and have another trained and licensed radiologist read them. I had to pay on my own, but I wanted to get it done ASAP, so I forked over the cash (it wasn’t actually that bad, in the grand scheme of things). After some issues with uploading and getting them the clinical history they needed, they read my images. I got a written report about five days later (including a weekend).

Good news, the soft tissue was “without clinical concern” and was “minimal residual thymus”. The thymus is apparently an organ that is in use only before your immune system is developed, then it shrinks away to almost nothing. Sometimes when you go through chemo, radiation, surgery, or some other major issue, the thymus regrows to help your immune system, then shrinks away again. Since I’ve not had a chest ct before, I guess there was nothing to compare it to. Anyway, that was all good.

You see it coming, though, don’t you?

There is some asymmetric nodular tissue in the right breast axillary tail region compared to the left which is nonspecific.

Unh. I had my mammogram in February, with no notation of issues. I know there was something in my first mammo that they immediately followed up with using ultra-sound. That was then noted in my charts, but it was supposed to be benign. The wording is a bit different on this second opinion report (of course it IS a CT versus a mammo, so…). So I figured it was the same issue as before, but sent the second opinion to my gyn onc anyway, asking if I needed to follow-up somehow. After no response for several days, I sent another message today asking for a response.

The response was, “this isn’t my area of expertise, but here are three breast surgeons we regularly refer to”.

Cue uprising of anxiety and distress. Cue Googling the phrases in the ct report. Cue seeking some place of numbness.

Cancers based in estrogen “travel in packs” said my gyn onc upon my original diagnosis over a year ago. Breast cancer is one of those in the pack. The only history of breast cancer I know about in my family is pretty limited…supposedly my paternal grandmother had it, around 50-years-old, but my dad doesn’t remember details. My mother thought my grandmother had a mastectomy, but we have no way of confirming that.

So I messaged my previous gyno, who is in my area (my gyn onc and his suggested breast surgeons are all at least an hour away) to see if they can recommend someone I can see here locally. It’s only been about an hour since I sent that message, so I haven’t heard back. They might not be interested in responding because I haven’t been back to them since pre-surgery.

I am not having a panic attack. I am anxious and concerned. I am unhappy. I am fearful. And I am angry.

I don’t quite know what to do with myself at the moment. I had hoped writing about it would help. So far, it has not.

 

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Liar liar brain on fire

I’ve been struggling with my health anxiety for over a week. As per usual, it’s pretty centered around my heart. I’ve made an appointment to see my cardiologist, but the online scheduler only had an appointment for NEXT Monday. I’m going to call in the morning to see if they have anything sooner, whether it’s a cancellation or what. If they can’t fit me in sooner, I might also check with my regular doctor–but getting in to see them is pretty difficult these days.

I keep trying to tell myself that if I’m still alive after this week of potential heart pain, then it’s likely just anxiety plaguing me and not a “real” issue. It’s my anxiety lying to me. My left arm hurts, my back hurts, my jaw hurts, I feel slightly off-balance, I’m nauseated. All those things could mean a heart issue…and all those things could be just my daily life. I can’t get around my lying anxiety brain to figure it out. I’m both hot and cold, sometimes feeling sweaty when there’s no sweat there. Right now my palms are warm and feel like they’re sticking to my laptop, but my feet are freezing cold and clammy.

I’ve had a pain in my lower right back today. I always have pain in my back, but this feels different. Is it real or anxiety? I hate that I can’t tell. I don’t understand how I’m supposed to know what is real and what isn’t. I don’t know when to seek emergency treatment and when not to. I don’t want to spend my life in the emergency waiting room…our local ER is terrible and our trips tend to last no less than 6-12 hours there. Most of that in the waiting room trying to get a bed to be seen (usually by a dismissive physician or physician’s assistant).

I’ve been depressed and not acting normal, not moving around much, not eating well, not drinking my water. I know this is all contributing to the fact that everything hurts me, but I can’t seem to get around it. I’m sitting poorly, also contributing to my pain. I’m not sleeping, some of which from pain, some because of the fear of having a heart attack.

I can’t even tell you how many good-bye letters I’ve written. In my previous house, I used to have them scattered around in weird places. Mostly hand-written in the dark of night when I was sure I wouldn’t make it through the night. Sometimes I write them on my computer and drop them into weird folders. Am I the only one? Does anyone else do this? I so wanted to write one the other night because it was that bad. I didn’t do it. I wanted to wake Hub and tell him good-bye, just in case. I wanted to do it before he went to sleep. I write the notes because I don’t want to frighten my wonderful husband…I can’t stand keeping him awake when he’s the one getting up early every morning to take care of the dogs and then go to work to support both of us.

I was sitting here earlier, just waiting for the time to go by. And I started wondering WHY I was hoping for the time to go by more quickly. I know I want to get up first thing and make calls to the doctor, but really, what is that going to solve? I’m not likely to get an appointment right away, so I’m still stuck in this anxiety limbo.

As I type, I’m restless. My jaw is hurting again. My back. My arm. I want to sob, but crying only makes me feel worse. I want to curl into a ball, but it hurts too much. I want to lie down and go to sleep but I’m afraid. I heard once that there are more heart attacks in the early morning hours, so I’m afraid to go to sleep because I’m afraid to have a heart attack overnight or in the early morning hours. For some reason my brain thinks that if I’m awake, I won’t have a heart attack. Or maybe I think if I’m awake, I’ll be able to get help if I start having a heart attack. Probably the latter.

This sucks so much. I hate this health anxiety. I hate that this is one of the few things that I’ve not been able to conquer. Sometimes I do so well, but other times I’m just so suffocated by it.

 

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Surgical consult conclusion

I had my surgical consult. I’m sort of feeling odd about the whole ordeal, because in effect, it was not much of an ordeal.

We waited over half an hour for my appointment. They had signs all over the office saying, “We apologize for the delay, but we are giving our patients our utmost attention. When you are in your appointment with us, you will appreciate that we are doing the same for you.” I was actually doing pretty well this morning before the appointment, and even on the way (which took over an hour because of traffic and Hub missed a turn that required us to squirrel around to get back to the right street). I didn’t feel jittery or anxious. While we were waiting in the doctor’s waiting room, I also felt okay. The place was mobbed…I’ve never seen a doctor’s office like that before. Later we heard there were four doctors seeing patients that day, so I guess that’s why there were so many people. Plus, almost no one came alone, so for every one patient there was a second person with them.

We were finally called in to an exam room and I got the interview with the nurse. My BP wasn’t horrible, but it wasn’t normal either. I’ve seen worse for damn sure, so I was okay with it. The nurse asked a couple of questions, then told me to undress from the waist down and wait for the doctor. It was probably another ten minutes before the doctor came in.

We met this doctor before and I knew what he looked like and what his mannerisms were. I like him a lot because his bedside manner is very mellow and when he asks you a question, he seems to really listen to the answer. If I were to try to give you an image for the doctor, it would be this:

Dr Surgeon

Dr Surgeon

The funny thing is, he’s really really tall, but he kind of has this long, droopy face. I totally told Hub afterward “he’s Droopy the Dog, isn’t he?” and Hub laughed and agreed.

Anyway, what was odd was that after I explained why I was there and why I wanted the hysterectomy, there was no conversation about other options. He didn’t try to talk me out of it or suggest waiting any further. I told him about my mother’s history and about how I had gone the conservative route two years prior after consulting with him. But that it was time to get the surgery because I didn’t want this getting any more advanced–either in size or in potential cancer. After a brief exam, during which he noted that we really were talking about big uterus and fibroids, he began talking about being able to do the surgery laproscopically. I was actually rather surprised considering the size of the uterus and large fibroid (I have 2 fibroids, one as big as the enlarged uterus and one smaller), so I said as much. He indicated that it wasn’t about the size so much as how available they were and if the uterus was “mobile” enough to be removed. He said there’s always a chance to have to convert to an abdominal incision, but most of the time that they start laproscopically, they are able to finish it that way. He said conversion rates are really really low. So that’s good, because recovery is more like 2-4 weeks for a laproscipc surgery and 6-8 weeks for an abdominal. And when I went to schedule the surgery (yep, I did it before I even left his offices), the scheduler said that I might not even have to stay in the hospital overnight, depending on what time the surgery starts. Whoa.

Anyway, after my asking a couple of questions (like how do they make sure there’s no possible spread of any microscopic cancers if there might be something hiding somewhere–they bag the organs INSIDE the body before removing them through the tiny incisions…so weird!), I asked if Hub had Qs. He asked something (I don’t remember what it was) and then we were on our way down the hall to the scheduler’s office. When we sat down, she wanted to know what our preference was for a surgery date, and I said “not next week” as a joke. So she said, “Okay how about the week after.” I sort of swallowed and squeaked, “Okay.” She wanted to know if we preferred to wait until after Memorial Day, but we don’t travel on holidays, so I said it didn’t matter.

So, I’m scheduled for two weeks. When we were done and on our way out, I asked Hub if he felt okay about all this. I told him I felt sort of numb, and I felt like I didn’t ask enough questions of the doctor or spend enough time. I mean, I did my research so I knew my options and I knew what the different surgery options were. I knew I wanted the hysterectomy, so I wasn’t looking for other options. I knew I wanted this doctor to do the surgery, and since he said YES to laprcoscopy, I was all good. So why did I feel the need to spend more time in the doctor’s office? Why did I feel like I was missing something? Hub had no answers. He felt like we got the information we needed and did what we went to do.

I came home and told my mother about the date. I emailed my brother to see if he’d come to the hospital to sit with Hub during surgery, since I don’t want my mother doing that and I don’t want Hub sitting alone. I looked up on the HysterSisters website as to what to bring with me to the hospital and how to prepare for after surgery. I got all the paperwork for my pre-op appointment with my primary (they don’t have any appointments for me so they have to talk to the doctors and see how they can fit me in), I got my pre-op bowel clean-out (fun times) instructions and I got my pre-op instructions. I won’t know what time my surgery is until the day before (WTF), and I won’t know if I have to stay overnight until after surgery.

I’m not obsessing over researching stuff on the internet. I’m trying to be INFORMED with enough information but not over-inundated to the point where I’m freaking out. Somewhere in here, in me, is some kind of emotion…but still I feel numb. So much so fast, even though I wanted it over with. And to some extent I’m GLAD it’s going to be over fast because I won’t have a ton of time to obsess and freak out. We’re doing mother’s day brunch here for 14 people, so this week is going to be cleaning and cooking. Next week I hope to be prepping my house and my household for post-surgery…and getting myself gathered to be in the hospital.

I feel it, though. The fear. The thoughts that I need to do a living will. The thoughts that I need to write my husband a letter saying all the things I would want him to know if I die. The thoughts that I want to leave notes for my parents and brothers and my long-time friend (whom I see very infrequently). The thoughts that there are things I want to do before the surgery because I might never be able to do them. The thoughts of how my loved ones will be without me. Who will take care of my parents. Who will love my husband. Who will take care of my dogs. It’s there, deep down below the surface, waiting to find a crack or crevice to slip through and get me…

 

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Enough already!

These PVCs are ’bout driving me crazy. Like I needed any help. I was fine for most of yesterday, with the flubadubas only coming and going here and there. This afternoon and tonight, they are back full force and I really just don’t want to have to deal with them. I have to go to my massage therapist tomorrow, and I’m not looking forward to going feeling the way I do. It’s too late to cancel (I’d have to pay in full, and it’s not covered by insurance), so I hope these damn things go away. As it is I feel like poop, and having to lay down for an hour while someone works on my trigger points (which is painful) while I’m getting PVCs repeatedly (and coughing, because I can’t seem to help it) is not something I want to do.

I want to WILL them away. I want to WILL my anxiety away. I want to WILL my depressive episodes away.I want to WILL myself to find hope and purpose. I want to WILL away the weight I’ve gained over the last year.

Well, that last one doesn’t count, because I should be able to do that one, I just can’t seem to get a handle on it.

Go away, flubadubas. GO AWAY. Leave me alone. I want to rest, I NEED to rest. I need to not feel that ripple of anxiety every time you do that premature THUMP. I need to not let my health anxiety take over.

I’m tired of this. I’m tired, period.

 

eta – I decided that it’d be a waste of my time and the massage therapist’s time to go to the appointment. I’d be so anxious that I wouldn’t get any benefit from the session. I’ll just have to eat the fee and deal with it.

 

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