I didn’t really realize how long it had been since I posted. I know a lot of stuff has (and hasn’t) happened, but I was genuinely shocked to note that it’s been a month since I last blogged.
Update on my mom. She’s still feeling well, which seems to surprise every doctor she’s seen. We’ve had multiple “second” opinions from a couple of doctors who are top docs in her particular type of cancer. After our pretty crappy experience with the first radiation oncologist, we requested new referrals for her to other facilities. After some extended time waiting for the referrals (holidays, etc), we finally got in to see a local radiation oncologist who is about fifteen minutes from our houses. Since she’s going to have to go 5 days a week for almost six weeks, we wanted to find something a little more convenient than the first doctor…plus, he was an asshole. Fortunately, the new doctor (and all the staff) at the new place were pretty great. My mother is really comfortable with the new radiation oncologist, and that’s all I need to know. Their facility has TWO hospitals backing their technology and research, so we’re getting some really great, cutting edge treatment technology. In truth, this doctor pretty much said the same as the first radiation oncologist–aggressive cancer, likely to spread even if they can kill the current recurrence–but the presentation was different. The aura was different. The intent felt different. I don’t know, it just all felt different, and like I said, if Mama’s happy…
So they had to study all her pictures and test out different treatment applications to see what would be best for HER situation. This week we go for the “dry run” so they can do a walk-through of the test to make sure everything is set. I would guess next week will be the start of the treatments if everything works out for the dry run. And from what we’ve heard, she’ll start feeling side effects in the first 2-3 weeks. But one step at a time. Right now, like I said, she’s still feeling good so she’s playing in the garden and cleaning the house.
Update on moi. I go for my surgical consult with the surgeon next week. So far I’ve been able to keep everything in perspective. The results of my hysteroscopy were mostly inconclusive. They grabbed a polyp but it was benign, so that was good. Beyond that, they didn’t get enough tissue to figure anything else out. So I go to the surgeon without that information even after all that. If I had known I would end up with inconclusive results, I wouldn’t have done the damn tests. The CRNP had told me that I really needed this test before I saw the surgeon, but now she’s saying “Well you’re getting a hysterectomy anyway…” Way to back step, lady. They also wanted to do a repeat ultrasound to make sure the cyst in my ovary resolved. Which I did and it did. Then the tech said, “But oh now there’s one in the other ovary.” Dude, they’re SUPPOSDA be there every month. She said the doc would probably want to follow-up on the new cyst, but the CRNP didn’t say that when she called to update me with all the results. So like I said, it’s off to the surgeon to see what he says. They already sent all my test results and the notes from my exams and tests to the surgeon.
My PVCs are greatly reduced. I notice them mostly at night when I’m trying to sleep. They’re manageable. I wish they weren’t there at all, but I can deal with them like this without them really infringing on my mental state. My sleep still sucks. I’m having crappy dreams again. And I’m waking up multiple times in the night. AND I’m waking up early in the morning and not able to get back to sleep. I HATE THAT.
I’ve been doing some hats here and there. Hopefully soon we’ll have enough to send to the infusion unit. Mom has been doing some other projects, so she’s slowed down on her hats, too.
It’s been feeling a lot like waiting around here. Waiting for her referrals, her appointments, her tests. Waiting for my appointments, my tests, my results. Hub has been dealing with some medical issues (minor), so that’s been on our front burner recently.
I’ve been seeing T on my regular schedule. Sometimes I feel like the appointments are just me chattering and not resulting in much. I wonder about that. But other times I know I need to be able to get help for something that’s bugging me. I still think this schedule of once every other week is good.
I’ve NOT been back to my massage therapist. She had to take six weeks off for some knee surgery and when she came back, I was right smack in the middle of all this …. waiting. So I told her I needed to see Mom’s radiation schedule and MY surgical schedule before I made any appointments with her. On one hand, I miss the massages and I know my body does. On the other hand, I’m functioning, so I know I can do without the massages. So I’m sort of iffy about that…
I’ve written a little bit. I did some work on a story and felt okay about it. I wish I had a good direction for it and I wish the characters didn’t seem so SAD at the beginning of the book. I don’t like to start a book that way. But even so, writing is writing and I felt good about what I did.
So now you know. I’m okay. I’m just mid-action.